As the CACNA1E-related Developmental and Epileptic Encephalopathy was titled as "Type 69",
we have chosen the 6.9. = 6. September as our CACNA1E Awareness Day!
We plan to create an international cookbook together with many families affected by CACNA1E.
A recipe from each participating country and a short introduction to the CACNA1E child/adult
will give the letters "CACNA1E" a face and a taste.
Anyone wishing to contribute can download the template and submit their recipe
by email to [email protected] no later than June 30, 2026.
CACNA1E International
Instagram:
@cacna1einternational
Facebook Site:
"Cacna1E International"
Facebook Group:
"CACNA1E support group"
LinkedIn:
CACNA1E International
